It's Jenna again. Sorry my mommy has not posted for a few days. We have been having lots of fun and she has been learning how to take care of my new trach. On Saturday they decided to change me to just being on the trach collar with a mist collar and oxygen. I only need to be on the cpap pressure support at night now so I can rest. Yay for me!! My methdone medicine was lowered too a little and I did not have any withdrawl!! They said if I was good the rest of the weekend with my feeds and such, that they would take out the arterial line in my left hand. Thank goodness, it's in my way when I try to do things.My daddy got to hold me today, which was nice, we played. Then later in the day my nurse said we could take a wagon ride out of the room!! It was great, we went around in the unit and down the hall past the trach unit and then out to the breezeway (which is a walkway between buildings that has frosted glass over the windows). The walkway had lots of light and I loved, because I felt like I was outside, it was awesome!! They did a chest xray of me, and my diaphram that was fixed has gone up a little. But they are not too concerned because symptom wise I have been fine, no difficulty breathing, so they are just going to watch it. Saturday evening I got a bath and I smell all clean now, mommy even got to fix my hair in pigtails! Well, it turns out on Sunday evening when my mommy was doing my trach care, she looked down and saw blood all over my bed. She got a little nervous, but turns out the tubing with my iv line cracked, so since I was doing good, they decided to take it out. Woohoo!!!! My mommy got more used to cleaning around my trach. Last night she learned out to suction all my boogies out of my throat through my trach. She was nervous at first, but she is a pro now!! They adjusted all of the doses on my medicines because I have gained weight since I came in. I am now up 12.1 kg which is over 26 lbs! I have some fluid on me, but they have also been fattening me up with tpn and lipids (fat) for a few weeks now and I started my feeds last week so more weight on me! I have been doing well with those also, no vomiting yet of my food. Yesterday I did vomit some mucous where I coughed so much, but that is good because I need to get it out. On Sunday, my mommy held me for a little bit, we napped together. I love being close to my mommy and daddy when they hold me. I have been a little tired over the last couple of days, but then I get energy and want to do things every once in a while. This morning OT came in and played with me for a little bit, I tried to color some and play with my blocks. But I got tired after a few minutes, and had to lay back down. Mostly my days consist of sleeping and watching Spongebob, Dora or Noggin. What a life. Daddy is sitting with me now and we are watching, you guessed it, Spongebob. Anyway, I had vistors this weekend too. My Nonny, Meme, Pawpaw, Uncle Stu and Aunt Missy all came to see me. It was great seeing everyone. I have been sleeping for a while and not really been able to interact with them. I am getting better, just have to get my strength back. They say I will probably go home and need physical therapy to help with my trach. I overheard the new attending this week, Dr. Catherine saying that the big thing they are watching me for right now is my belly, when will it get better and I will heal, when can I have food in my stomach again (because I cannot go home on the feeding tube I have now because it is in my intestines, no my belly) She is not sure the length of time it will take (GI doctor Putnam makes that call), but respiratory wise I am doing well. She said that from that stand point I can go home with a trach, but maybe since I have to stay because of my belly then my lungs might get better enough to not need the trach at home, but said we will see how I do. I will try to be good, I really scared her the last time she was the attending doctor. I was really sick, but I feel much better now. They said that they are going to lower my ativan tomorrow. So, I better go. I am really sleepy. Hope you like the pictures of me, mommy loves taking them! Bye Bye!