May 12, 2009
We went back to Cincinnati Children's for another cardiac catheterization to help balloon (stretch) the pulmonary arteries to my lungs. During the procedure he was able to open two arteries to her left lung agressively, which improved the blood flow quite a bit. He said that since he was able to do this, her lungs were a bit overwhelmed and caused pulmonary edema to set in (which is fluid on the lungs). He was able to take care of this by giving her a dose of Lasix and also decided to watch her in ICU overnight to make sure that she was ok. Since there was new blood flow to her lungs, this was a good sign and meant that it was possible she was ready for surgery to close her VSD (hole in her heart). So, he said that they would be conferencing on her case this week to discuss what the next step would be. In reference to her arteries for long term, he said that we would be returning every 5-6 months for quite some time, since these arteries narrow over time and do not grow or expand on their own. He said that if she is not able to have her hole closed, over time her heart would strain, but is ok for her lifestyle at this time. He said that she is not a heart transplant candidate, because her issue is not her heart, it is her lungs. A heart lung transplant is not a safe option either because the life expectancy is very short. So, at this point we will wait until they conference on her case and we will wait to be called. Hopefully with good news. Jenna had a little trouble with anesthesia this time, she was very aggitated and vomited three times. So a little rough initially, but once we got home, she was ready to play. We will post once we hear about her case, and thanks for all of the thoughts and prayers.
Love, Jenny, Justin and Jenna