Starting to be herself again.....

Hello everyone,





Just wanted to send a quick note out on I am doing. I am trying to feel better soon, so Mommy and I can get back home to Daddy. I miss him lots. These past few days I have started to come around some. I unfortunately developed a yeast infection on my neck, so I have started to use a special cream to help clear it up. My results from my cultures came back and besides just having the one virus, I also have viral pneumonia. The docs felt that I had bacterial type, since I responded so well to the antibiotics that they gave me, but nothing showed in my results. Go figure. I have required a lot more oxygen since I have been here than normal, I usually am not on any when I am at home. My heart team said that it is due to how my blood is pumping right now when I am being active. So, once I am feeling better before I go home they want an echo to make sure that I am improving. Earlier in the week, my GI doc stopped my Erythromycin and Zantac meds for my stomach, because he felt that they were not helping me anymore. So far I only vomited once, and mommy thinks that it may have been due to me coughing too much. So, yay! They looked at my lungs again on Friday, to see if I had improved with the fluid. Not much of a change according to the doctor, but some. They said sometimes, the lungs can be slow to change on picture, so if I seem to be improving, this is a good sign. So, they decided to continue my antibiotic through today. Yesterday they were still unsure if they thought they should stop my iv antibiotics, but today since I have been getting even better, they decided tomorrow would be my last day, and then switch me over to oral for about a week. So, they want to do another chest xray tomorrow and my echo to make sure that I am improving even more. If everything is clear, then they want to let me go home! Yay! I not needed near as much oxygen in the last day or so. On Friday, I was needing up to 2 liters at certain times, but now, the max I have been needing is 3/4 and this is only when I am really upset. Mostly I have just needed around 1/8 liter, which is just barely anything. So, hopefully tomorrow I will be able to start needing next to nothing. Cross your fingers.

I have been feeling better in the last day or so. This makes my mommy really happy. Which means I will get to go home soon, I can't wait. This sleeping the hospital, with people all around and beeping everywhere is for the birds. Mommy can't wait either, because then she gets to sleep in her own bed again. I have even had enough energy to stand up in the bed and in mommy's lap. Today I decided to be brave and stand up in the rocking chair and hold onto my bedside table. This is huge for me since I quit doing everything (walking, crawling, playing, talking) almost two weeks ago and now I feel better enough to do it again. I am even feeling good enough to eat. I love noodles, especially Chinese. This morning Mommy brought me eggs, pancakes and hasbrowns. Yummy Yummy in my tummy. :) It was soooo good. She got to go to IHOP with Aunt Mi, Aunt Stacey, Uncle Mike and cousin Sophie. They came to visit so mommy could have a break. It was really nice for her, she is so tired. I have made even more friends this time and got to see my old friends, which was nice. i miss them. I will not be coming back again until February, but not to stay, just an appointment with the pulmonologist. I will have scopes done sometime in February and then back for my heart in April. Lots of running around to do. I just want to feel better and get to stay home for a while. I want to play with all of my new toys from Santa!!!!

I am really tired, so I am going to nap. Thanks to everyone for caring about me so much and the prayers too. It means a lot to my mommy and daddy. Mommy will try to post really soon on how I am doing. If all goes well, I will be leaving probably by Tuesday. We are making sure the tests are ok, plus for Pawpaw to come get us. Daddy has to work, but I will see him soon. Thanks again, miss you all! Can't wait for spring so I can come out and play with everyone!

Love, Jenna